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Patient Education Calendar of Events

GOAL

The goal of our organizations is to provide accurate and reliable information for patients about the diagnosis, evaluation and treatment of thyroid diseases.

WHO WE ARE

AMERICAN THYROID ASSOCIATION
www.thyroid.org
ATA Patient Resources
Find a Thyroid Specialist
Phone (toll-free): 1-800-THYROID
e-mail: thyroid@thyroid.org

ATA Mission
The ATA is the leading organization devoted to thyroid biology and to the prevention and treatment of thyroid disease through excellence in research, clinical care, education, and public health.

ATA Values
The ATA’s values are:

• scientific inquiry
• clinical excellence
• public service
• patient advocacy
• education
• worldwide collaboration and collegiality
• ethical conduct

Bite Me Cancer
www.bitemecancer.org
10467 White Granite Drive, Suite 300
Oakton, VA 22124
Phone: 703-709-2539
email: customerservice@bitemecancer.org

Our mission is to fight cancer through research, education and inspiration.

Bite Me Cancer was formed as a nonprofit foundation in September, 2010, by Nikki Ferraro, who was 17-years old at the time. Nikki was diagnosed with Sporadic Medullary Thyroid Cancer in April 2010 when she was a junior at Chantilly HS in Virginia. Nikki’s goals for Bite Me Cancer are focused on 2 large projects: (1) is to support teenagers battling all cancers by providing them with Teen Support Bags containing items specifically chosen for teenagers to use and (2) raising research funds and awareness for thyroid cancer.

Bite Me Cancer has shipped over 5,700 bags to 115 hospitals across the United States as of January 2019. With the Bite Me Cancer thyroid cancer research program, the foundation has funded 6 grants through a collaboration with the American Thyroid Association as of January 2019.

GRAVES’ DISEASE AND THYROID FOUNDATION
www.NGDF.org
P.O. Box 2793
Rancho Santa Fe, CA 92067
Phone (toll-free): 1-877-NGDF-123
Fax: 1-858-756-5302
e-mail: Gravesdiseasefd@gmail.com

Founded in 1990, the Graves’ Disease Foundation offers support and resources to Graves’ disease patients, their families, and health care professionals. Their mission is to find the cause of and the cure for Graves’ thyroid disease through research, to improve the quality of life for persons with Graves’ disease and their caregivers and to educate persons with Graves’ disease, their caregivers, healthcare professionals, and the general public about Graves’ disease and its treatment. The web site features a monitored bulletin board.

LIGHT OF LIFE FOUNDATION
www.checkyourneck.com
PO Box 163
Manalapan, NJ 07726
Phone: (toll free) 1-877-LOL-NECK (565-6325)
Phone: 609 409-0900
Fax: 609 409-0902
email: info@checkyourneck.com

The Light of Life Foundation, founded in 1997, is a nonprofit organization that strives to improve the quality of life for thyroid cancer patients, educate the public and professionals about thyroid cancer, and promote research and development to improve thyroid cancer care.

ThyCa: THYROID CANCER SURVIVORS’ ASSOCIATION, INC.
www.thyca.org
P.O. Box 1545
New York, NY 10159-1545
Phone (toll-free): 877 588-7904
Fax: 630 604-6078
e-mail: thyca@thyca.org

ThyCa: Thyroid Cancer Survivors’ Association, Inc., founded in 1995, is an international nonprofit organization, guided by a medical advisory council of renowned thyroid cancer specialists, offering support and information to thyroid cancer survivors, families, and health care professionals worldwide. ThyCa: Thyroid Cancer Survivors’ Association, Inc. (ThyCa), through a collaboration with the American Thyroid Association, has provided funding in support of 72.5 special research grants focused on thyroid cancer and medullary thyroid cancer since 2003.

THYROID CANCER ALLIANCE
Burgemeester Bosstraat 46
3043 GD
Rotterdam, The Netherlands
www.thyroidcanceralliance.org
www.thyroidcancerpatientinfo.org

The Thyroid Cancer Alliance is an international network of national thyroid cancer patient support organisations and/or thyroid patient support groups, dedicated to working together towards providing support, information and encouragement to patients and their families. Its activities include promoting education and awareness of thyroid cancer to the general public and medical professionals; bringing together leaders of national thyroid and/or thyroid cancer support groups so that they can share information and learn from each other’s experiences; and promoting thyroid cancer awareness all over the world through participation in thyroid cancer awareness month (September). It also participates in umbrella organisations for cancer patient advocacy such as EURORDIS, Workgroup of European Cancer Advocacy Networks (WECAN), and the European Cancer Patient Coalition (ECPC).  The TCA will be displaying the latest editions of its patient materials on advanced thyroid cancer, in English and Spanish at the ATA in Washington DC.

THYROID CANCER CANADA
www.thyroidcancercanada.org
Phone: 416-487-8267
Fax: 416-487-0601
e-mail: info@thyroidcancercanada.org
Thyroid Cancer Canada is a non-profit organization founded in 2000. The organization works towards creating an environment in which people who are dealing with thyroid cancer, especially the newly diagnosed, are met with support and information. Their goals & objectives include facilitating communication among thyroid cancer patients, providing credible information about the disease, providing emotional support, and assisting thyroid cancer patients with voicing their needs to health care professionals and those who are responsible for health care policy.

THYROID FEDERATION INTERNATIONAL
www.thyroid-fed.org
e-mail: tfi@thyroid-fed.org
Thyroid Federation International (TFI) was established in Toronto in 1995. Thyroid Federation International aims to work for the benefit of those affected by thyroid disorders throughout the world by providing a network of patient support organizations.

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